Research starts with YOU. Let’s make life better for every patient together
Welcome to the Myositis Patient Led Research Hub!
Patient-led research places patients with myositis at the center of the research process. As partners and leaders, patients ensure studies are relevant to their needs and daily lives. This approach, which can accelerate data collection and foster collaboration, gives patients power and promotes research that improves quality of life. The goal is to create a global hub for patient-led research, providing understandable information and facilitating trial recruitment.
Explore Our Research Library
Curated by the MSU Right Now Research Team, find the latest information on myositis research and clinical trials, including patient-led research activities worldwide.
Meet the MSU ‘Right Now’ Research Team
We believe in putting the patient at the center of any collaboration with industry, academia, and government agencies to improve the quality of life of ALL affected by myositis.
You are the real experts in your journey. We ensure your insights guide everything we do – from a community call to action to research insights to actions that help make your life better.
Myositis Patient Connect
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Patient Connect is a next-generation platform designed to bring the myositis community together. It empowers patients to share their experiences, connect with others who understand their journey, and access reliable information in one place. Through Patient Connect, individuals can find local and virtual support groups, explore educational resources, and learn about ongoing research and clinical trial opportunities – all within a trusted, patient-led environment curated by MSU